Fair Warning…

I apologize to those who follow my blog that nothing new has been added in 2 or 3 weeks.  I have been fighting with the MS that seems to want to screw with my hands and I absolutely dislike talking into a microphone while the computer prints my words.  This old broad doesn’t work that way.

Anyway, the anger towards the state our nation is in has been building – and I have been taking copious mental notes about the string of injustices that have occurred in the past month.  Today I plan to park my butt in front of my computer and write my little fingers off.

If I don’t post it today, it will definitely appear tomorrow.  My apologies to Cry and Howl for not being a good contributor.  I promise to do better in the future.


Thank you, Obamacare! Love, Your Newest Victim


It is clear that the Ego in Chief doesn’t give a rat’s left gonad about the people of this country unless they are about to enter a voting booth.  Everything he does is to benefit himself(ie), as evidenced above.

With that said, I am going to engage in a little self-centered conversation for a moment – but, my problem may ultimately affect millions of Americans.

As many of you know, I have Primary Progressive Multiple Sclerosis.  Anyone with GOOD medical insurance (at least those of you who have not yet received cancellation notices) might know how difficult it is to get an appointment with a Neurologist or other specialist.  When I was working and had a “Platinum” plan, I had to wait 3 months for an appointment to confirm the diagnosis my GP gave me after taking an MRI.  I also have hypertension that is finally – sort of – under control after years of working with my doctor to find the correct combination of medications.

After losing my job (another story for another time) I could not afford the COBRA plan.  Colorado has a program called Colorado Indigent Care Program (CICP) and I was able to receive basic care with a small co-pay for a while.  I was advised to apply for Supplemental Security Income Disability Insurance and it took 7 years of applying and re-applying before I was finally approved in 2012.

I now live on $710.00 per month plus I am entitled to Medicaid.  I cannot get SNAP because I am told I make too much (huh?)  or any other assistance from the State.  It is not that I WANT the help, but some days I think it would be nice since I worked hard all of my life and contributed to these programs whenever I received a paycheck.  I am not working because I cannot work – not because I am some welfare baby who lived my life lying on my ass watching Ellen or Days of our Lives.

Yesterday I got an odd phone call from my pharmacy.  It was a robo-call saying that there was a glitch with one of my medications that they were working to clear up.  Okay.  So, I waited and waited, but never got another call.  I intended to pick up my meds today.  I have 10 refills left.  So, I finally called the pharmacy and they told me they could not refill my hypertension meds because Medicaid dropped it from their covered pharmaceuticals.  This medication costs $125.00 a month and there is no generic available.  I cannot afford it anymore, but if I stop it without phasing off of it the side effects include stroke , cardiac “event”, fainting – you know, all the fun stuff.  I never received a notice from Medicaid and now worry that my other meds may not be covered either.  I see many hours on the phone talking to morons in my future.

As of today, according to The Washington Post (I chose a Barry-friendly source so that no one could accuse me of using “flawed” reports from Fox News):

“Approximately 365,000 of those people have purchased private insurance and 803,000 have been determined to be eligible for the public Medicaid program. These numbers count data from both October and November, and show an especially quick growth in HealthCare.gov enrollment.”

EIGHT HUNDRED AND THREE THOUSAND!?!?  I can barely get appointments with my doctors now!  What is going to happen to all of those disabled, poor, elderly or chronically ill patients who have been on Medicaid due to a real need for years?  Are we all going to get pushed aside and left to rot?

I guess, as long as Barry has a hot Danish dignitary to flirt and take selfies with in front of his wife, the American people are not even worth his time giving a shit about…

I will admit that I’m scared and don’t know where to go from here.

This is a Joke…right?

I was denied SSI four times.  I now receive twice-monthly surveys from an independent company asking how my experience with the Social Security Administration was?  “IT SUCKED” was obviously not the response they were looking for because the little reminder cards keep-a-comin’.  Mind you, all correspondence is tagged with the reminder that they are in strict compliance with the “Paperwork Reduction Act of blah, blah, blah…”  Goody for them.

What I want to know is how do they have the BALLS to go on a vacation to a resort in Arizona, hire an independent company to produce useless surveys and still deny SSI to someone with a disease that is progressive and inevitably devastating?

My daughter and Me

My daughter and Me

To top it all off, my daughter has Factor V Liden, a blood clotting disorder.   She suffered a massive stroke at 18 which left her in a coma for 2 weeks and rendered her unable to speak for 6 months.  Thankfully, my ex-husband had good health insurance, because I shudder to think what would have happened to her if we had to rely on the government for help.  She will probably never be able to collect a dime of the money she has paid into Social Security upon her retirement because there will be NOTHING LEFT.

How much more are we supposed to take?  I just don’t get it…

Hire the Handicapped…I’m Fun to Watch

Something I don’t talk about very often is Multiple Sclerosis.  I have it, I live with it and I laugh at myself a lot.  There are days (like today) when I get annoyed with my body because it won’t cooperate with my mind.  Keeps wanting to type “e” instead of “d”, etc.  However, I have a big future in mosaics if I can find the time to sort through all of the shards of dishes and glassware I have dropped on the kitchen floor.

I have always been extremely independent.  Leo with a Scorpio moon, Scorpio rising…karmically screwed, you know.  I was a tattoo artist for many years.  It was a great profession, I took it very seriously.  I quit tattooing shortly after my diagnosis because I felt I could not give my clients the best they deserved.

I do have a point, so bear with me for a moment.

I had disability insurance, which was cancelled because they said I am “not sufficiently disabled” to receive payments for the next 20 years.  Plus, they stated that I refused to use “approved medications” to treat my Multiple Sclerosis.  “Approved Medications” include, but are not limited to, subcutaneous injections into the stomach, thighs and back of the arms once every other day of Interferon.  This is a form of chemotherapy, though it is mild in comparison to that used for cancer.  OR, I can go into the hospital once a month and receive full-blown chemo for a year.  Yes, I tried injecting myself, and almost ended up hanging myself  from our ceiling fan.  I developed Agoraphobia and said ENOUGH…NO MORE!!! I watch my diet, keep active and refuse to act like a ninny. (Told ya I was a Leo)  I was also told that I do not go to the neurologist or get MRI’s often enough…uhm, you canceled my sole source of income and a Neurologist Visit costs $125 for a 15 minute session, an MRI with contrast dye is $1,700.   Dude…Seriously?

Since I have been unable to work for about 6 years now, I have not contributed to Social Security. BECAUSE I AM DISABLED, duh…  So, Social Security Disability is not available to me.  Supplemental Security Income could be available.  But I have been denied 4 times.  I am “not sufficiently disabled”.   Where have I heard that one before?

I should be one of the first people to jump on the healthcare bandwagon.  NO FREAKIN’ WAY!  I do not want the government jumping in and telling me I have to inject myself, I have to use chemo.  I don’t want them to assign sub-standard doctors to me or any other person in need of long-term medical care.  I would rather see the government fix Social Security, get illegal immigrants off of free government programs and give the citizens of this country the respect they deserve.  I have worked since I was 9 years old (alright, in the beginning it was only babysitting) and never shied away from hard work.  If I could maintain a full-time job, I would.  I am tired of the comments people make when I get out of my car (which I have handicapped plates for) and am having a good day.  Here I am, feeling good about myself for not walking like I crapped my pants for the first time in months, and my eyeliner is actually on my eyes, then some idiot brings me down by screeching across the parking lot that I am milking the system by faking disability.  Thank Goddess my middle finger still works 🙂

I do not want a Healthcare Reform Bill that is rushed through, unread, overloaded with pork and that gives better options to people who are not here legally than it does to the people who have dutifully paid into the largest Ponzi Scheme in world history – Social Security.

And that’s all I have to say about that…