On Wednesday, June 5th, Judge Baylson of the federal court in Pennsylvania ordered Secretary Kathleen Sebelius to allow an exception to the rule that children under 12 cannot be placed on the adult recipient list for a lung transplant.  Prayers of thanks and my utmost respect go out to Judge Baylson.

Unfortunately, the night she learned that she was placed on the adult list, Sarah Murnaghan’s condition worsened.  I have researched many sites trying to understand the complicated Lung Allocation System (LAS) and have been unsuccessful.  What I do know is her score was 36 and is now 78 (Fox News Channel) – that is, apparently, not good.

Today, her medical condition took another turn downward.  Sarah has been intubated and may be placed on a heart/lung machine if a donor cannot be found soon (Fox News Channel).  This machine would be a last grasp at hope for her family.

If Sebelius had not been so flippant with her “some people live and some people die” attitude, maybe Sarah would have received her lung transplant by now.  Perhaps not.  But, by refusing to waive the age requirement until she was ordered to, precious days ticked away.  It wasn’t like she couldn’t sign the waiver when she was out soliciting funds from the Robert Wood Johnson Foundation for Obamacare.  Signing a piece of paper only takes a moment.

If this is the type of treatment families can expect when their children are in urgent need of medical care before Obamacare is fully implemented, what is going to happen to our children once it is?  All it would have taken was a signature to give Sarah a better chance.  The same person will be holding the pen in 2014.  If this does not give every parent, grandparent, aunt, uncle, or family friend chills up their spines, I do not know how better to bring the point home.

Well, let’s try this – Only the chosen will survive.  The rest of us are fucked.

Please pray for Sarah and her family.